Shields, G. E., Brown, L., Wells, A., Capobianco, L., & Vass, C. (2021). Utilising patient and public involvement in stated preference research in health: learning from the existing literature and a case study. The Patient-Patient-Centered Outcomes Research, 14(4), 399-412.
Background: Publications reporting discrete choice experiments of healthcare interventions rarely discuss whether patient and public involvement (PPI) activities have been conducted. This paper presents examples from the existing literature and a detailed case study from the National Institute for Health Research-funded PATHWAY programme that comprehensively included PPI activities at multiple stages of preference research. Reflecting on these examples, as well as the wider PPI literature, we describe the different stages at which it is possible to effectively incorporate PPI across preference research, including the design, recruitment and dissemination of projects.